Does every Chiari or Syringomyelia patient experience the same symptoms?
Well, in short - No and here's a potential explanation of why, or at least how it has been explained to me recently.
With Chiari Malformation, in laymans terms, there is a pressure build up in the back of the skull because the Cerebropsinal fluid is not allowed to flow correctly. Differing levels of pressure on the tissues and nerves located within the Foramen Magnum area build up and are affected by physical activity, coughing, sneezing, laughing, straining bending and stretching. Dependant upon the level of pressure and on which nerves will dictate the type symptoms experienced.
With Syringomyelia sufferers it depends where in the spine the Syrinx is located and how large the Syrinx is (meaning how far up or down the spine it covers or if there is more than one Syrinx) and which nerves that they are currently putting under pressure. It may be that your Syrinx is putting the nerves that control your left leg, or right arm or left hand under pressure, where someone else it might be affecting a different set. Or indeed if you have mixed symptoms one day that differ to the next, it might be that the pressure is shifting from one to the other.
No two Chiarians are alike, there are many nerves in the body and different levels of pressure, and different pain tolerances and to expect each person to be affected in exactly the same way should be regarded as wrong.
Other Links:
Natalie’s Story
How does a Syrinx form?
Chiari and Syringomyelia Symptoms
Glossary of Terms
