Want to Help Chiari Blog?
Sat, 09/26/2009 - 13:06 | 
Chris Do you want to help Chiari Blog reach more people in the UK and beyond? Do you have Chiari? Do you know someone that has? Want to help them? Do you need more information?
Have you found any information here that has helped you?
If you would like to contribute and help increase awareness there are many ways that you can do this.
1. Bookmark my site in your favourites and keep coming back.
2. Join the forum and register as a user.
3. Subscribe to the forum and receive regular newsletters and never miss out on new posts and information. If you subscribe before the end of December 2009 you will be entered into our free draw to win 2 weeks accommodation at my self catering apartment in LANZAROTE. (see the relevant post on here for details)
4. Follow me on twitter or send this article to twitter
5. Add me as a friend on Facebook
6. Subscribe to my RSS feed
7. Email me
8. Leave a comment with our details against this post or any other post on the site.
9. Suggest topics for a post or even send me a "guest post" which I will look at publishing for you.
10. Have any fund raising ideas? Send them in and I will take a look at them and push them for you.
11. Want to advertise on the site? Then contact me by email.
12. Do you have any information to offer? Add to a post? Disagree with the content of any post? Contact me by email.
I want to make this site as encompassing as possible, I want to spread awareness and offer great practical advice to anyone with Chiari or to anyone who knows anyone with Chiari.
Please help me to help others!
Other posts that you may fins interesting:
Glossary
Syringomyelia – What is it?
So what is Chiari Malformation?
hi, i'm 49 yrs old and was diagnosed with chiari-1 and syrinxs...i'm having my decompression next week (4th or 5th of april 2011) at the national hospital for nerology and neurosurgery in london wc1n...i hope to return to this blog and read more about your experiences and tell you about mine and keep this site full of helpful info. good luck to everyone!
Hello, can you tell me how a diagnosis is made in the UK? I don't mean how a diagnosis is reached, I know that's with an MRI; I mean who do you actually have to see to get it?
I read on a US site that neurosurgeons don't see anyone till they have been diagnosed, do you know if that is true in the UK?
Thanks
Lin
Replied by email ;)