Visitors Comments
Fri, 10/16/2009 - 13:24 | 
Chris 
Please feel free to comment on the blog or it's content. It is wonderful to have visitors to the site, and even better if you join up and make yourself visible.
I would love to hear what you think!
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This blog is growing, and I have not yet added everything that I want to. I am also learning something new every day about Chiari and Syringomyelia and will post when I have done enough research for it to be of use.
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Thank you
Chris
Thank you for visiting, please leave your comments and questions here.
Hi All
I am new to this, both to the forum and to Chiari having been diagnosed at end of June following an MRI for neck pain and MS type symptoms. I'm awaiting a date for more extensive MRI and surgery. The article about how to talk to someone with chiari and the response is just amazing so much sums up how I feel, thank you, makes me feel less alone with it all. If one more person tells me 'not to worry' I will scream, like thats going to happen. I live alone with two children (one of which has some symptoms of chiari) have a new diagnosis and am awaiting major surgery of course I'm going to worry!
Reading all your stories has really helped me over last few days, am trying to join the forums but there is a fault meaning new people can't register, hopefully that will be sorted soon
Thanks again all for sharing your experiences
Gill
Hi Gill
Great to meet you and thank you for your kind words.
I am glad that this post has helped..... it was kind of cathartic to me too at the time, and really still is each time I read it and ground myself.
If you need a chat at some point, please dont hesitate to send me an email, we can even talk on the phone if you are comfortable with that.
I have children too, and do worry about if they will show signs in the future. Even think of getting them MRI'd as soon as they will lay still and not be phased by it.
You arent on your own, as soon as the forum reg is fixed you will find that. Lots of great people on there who really are fab.
Speak soon
Chris