Well, after reading the response to the petition, it seems that there is a standard reply doing the rounds. How serious do they take it? .....not at all by the looks of it.

Laura Hickman started up a petition last year and managed to get over 500 signatures, thanks in part to some of you lot that read this blog!!! Thank you! The link to the original petition is http://bit.ly/3J8Vqu.

I just received a reply, as all those that have signed it also have, but I read the reply and felt a little de ja vous..............

I received the exact same reply from my own MP Andy Burnham last year.................... which I did research and found to be full of incorrect comments and lies.

See the response that I sent to him and posted on here for all to see...........

http://chiariblog.co.uk/content/reply-my-letter-my-local-mp-andy-burnham

This was a long time ago, it was wrong then and it still is.................

Check out the link for NHS Evidences website and type in chiari............ you have to be really specific with your search terms, and even then you don't get anything useful towards diagnosis????? No-one is going to make an educated patient diagnosis from that are they?

Recognised as a long term illness? Not according to the Walton Centre it isnt, if it was then it would have the same patient information available as MS / ME / Cancer etc.............. More lies.

I haven't had a reply from Andy Burnham yet.......... I guess that they don't like being challenged?

This has given me more motivation to take this back on and get an answer..........

If all the government can do is regurgitate an old response and add new dates to it, then it just goes to show how little they care about the "minority"

Absolutely gob smacked!