Chiari Malformation and Syringomyelia Specialists
Tue, 02/09/2010 - 23:10 | 
Chris The Ann Conroy Trust has a lit of specialist Neurosurgeons around the country who are affiliated to the charity.
The following is the list:
They practise in different parts of the UK but they all have an interest in the treatment of Syringomyelia and Chiari malformations. They would be happy to accept referrals from general practitioners or other hospital specialists.
Mr Richard Ashpole
Queens Medical Centre
Nottingham
Mr R D E Battersby
Royal Hallamshire Hospital
Sheffield
S10 2JF
Mr Thomas Carroll
Royal Hallamshire Hospital
Sheffield
S10 2JF
Mr Munchi S Choksey
Coventry & Warwickshire University Hospital
Coventry
CV2 2DX
Mr Graham Flint
Queen Elizabeth Hospital
Birmingham
B15 2TH
Mr Carl Hardwidge
Hurstwood Park Neurological Centre
Haywards Heath
RM17 7SP
Mr Sid Marks
The James Cook University Hospital
Middlesborough
TS4 3BW
Mr R Johnston
Southern General Hospital
Glasgow
G51 4TF
Ms Jennifer Brown
Southern General Hospital
Glasgow
G51 4TF
Mr John Gray FRCS
The Royal Victoria Hospital
Grosvenor Road
Belfast
BT12 6BA
Mr David Mowle FRCS
Ninewells Hospital and Medical School
Dundee
DD1 9SY
Mr Dominic Thompson FRCS
Paediatric
Great Ormond Street, London
Mr Rodney Laing MD FRCS (SN)
Cambridge University NHS Trust
Cambridge
CB2 0QQ
Mr Tim Pigott
The Walton Centre for Neurology
and Neurosurgery
Liverpool
L9 7LJ
Mr Bob Redfern
Morriston Hospital
Swansea
SA6 6NL
Professor J Van Dellen
Charing Cross Hospital
London
W6 8RF
Mr Richard Selway
Kings College Hospital
Denmark Hill
London
SE5 9RS
Mr Richard Cowie
Greater Manchester Neurosciences Centre
Salford Royal Hospitals
Mr Richard Ashpole
Queens Medical Centre
Nottingham
Mr Barrie White
Queens Medical Centre
Nottingham
Mr Conor Mallucci
The Walton Centre for Neurology and Neurosurgery
Liverpool
L9 7LJ
Mr Bruce Mathew
Hull Royal Infirmary
Hull
Mr Andrew Broadbelt FRCS
The Walton Centre for Neurology and Neurosurgery
Liverpool
L9 7LF
Mr Nick Haden
Derriford Hospital
Plymouth
David Allcutt FRCS
Consultant Neurosurgeon
Beaumont Hospital
Dublin
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JUST FOUND YOUR BLOG - HAD DECOMPRESSION IN 1996 - WOULD LOVE TO KNOW IF OTHER PEOPLE SUFFER WITH COLD/SWOLLEN HANDS AND FEET - IT IS ONLY MY RIGHT SIDE WHICH IS AFFECTED. PAULINE
Yes my daughter does and weird temperature issues too!
Hiya
Its not something that I have come across yet, but the list of symptoms is massive!
There is a forum at www.chiari.co.uk/chat where you can meet up with other people in the same position or there are several facebook groups that are around and contain a really brilliant bunch of people.
If you have Facebook check out http://www.facebook.com/home.php?sk=group_128833390503455 and contact one of the admins.
Great to meet you.
Chris
Is this list really up-to-date? I've seen it on the Ann Conroy website for years without any additions, deletions or changes.
To be honest this shouldn't actually be on here without the permission of the Trustees of The Ann Conroy Trust. To post info from the website or newsletter needs written permission from ACT.
Is this another "we can't help you until you pay us money" comment from ACT?
How small minded (and no this isnt a pun!) do you ACT people have to be?
Are you an ACT member or are you one of the directors?
If I receive a request to remove this from the site officially by ACT then I will.............. in the mean time please don't be negative on here!
This site and many others like it are intersted only in helping people............... not making money, not charging a mmbership and not belittling genuine people who are looking for help.
Can I say the same about ACT site and facebook page? it's a shame that I and many others can't.
Thanks
Chris
I had my surgery under Mr Adrian Casey at The National Hospital for Neurology Queens Square London if you would like to add him - think he is the only chairi expert there. regards, JS London
not sure to be honest, but its the most up-to-date one that I have seen.