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Mon, 11/08/2010 - 18:54 | 
Chris 
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Hi, my name is Chris. I am 40 years old, married to Sharon and have 2 young children. I have Chiari and Syringomyelia and went through Decompression surgery in April 2009. The aim of this blog is to raise awareness of this condition and offer support by way of helpful information to other sufferers. This blog represents my own experiences, those of my friends and people that I have met with these conditions and the great advice that I have been offered and my journey towards either acceptance or recovery.
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Mon, 11/08/2010 - 18:54 | Chris 
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hi chris
my name is duncan and i had my spinal decompression just over 2 years ago at hurstwood park neurological centre.
i had the same advise from my neorosurgeon as other sufferes in that i was told that improvement in my symptoms could not be guaranteed but it may help things getting worse
this is how things turned out and i have not been getting on too bad but just recently i have felt that things were getting worse and this has been getting me down which has not been good for my partner having to try and help dael with it.
i have found it helpful just to read other peoples stories as it helps to know that my problems are not unique and other people are having the same problems and dealing with them.
i hope i have done this correctly as this is the first blog i have got involved with
cheers dunk
Hi Duncan,
This is my first blog ever too..i had my decompression op 5 years ago now, but i am lucky i live in the north of scotland, and we have a good medical network, i can sympathize with you fully, about feeling down especially when you get pain..i still suffer pain not the headaches, that went after the op, but i suffer from the cape pain especially when i am tired..and when i push myself to hard, its the chest pain that really scares me because you just dont know if its your old ticker getting stressed..lol..i am 46. i know now not to panic and just rest, i also suffer severe cold hands and feet always my left side of my body and when i get cold i get really cold..lol. my other symptom that has just recently started is my neck has spasms and get sort of stuck for few nano secs. i also get really tired some time i callit a funny tired because its like your head just wnts to shut of for wee while, but i just have a wee sleep and i am ok.
I take a drug called pregabelin, which is a nerve pain killer, and with out that i would be suffering a lot more especially with my legs and joints.
hope some of this makes you realise you arent alone, and try not to be too
hard on your partner they worry too.
jane
I have an amazing friend. She is the life and sole of the party but recently has been struck (the best way to describe) with terrible headaches and has been exhausted and at the later part of the day has takn to her bed. Although I do not know half I know she is in pain and I know her family and can't believe that she has been so ill. Today she was diagnosed with the bove and in true style has skimmed over it and said she is ok......she is so fit and so busy it would not do to be ill! As a friend I need to help I need to find out for her where she can go and get the ball rolling. Can anyone help...........I feel the diagnosis has taken too long 4 months and below the surface has in the past suffered from headaches but this is now over and above the previously diagnosed migrane-it is debilitating. What makes it sad is she is a talented sportswoman and her work involves hard physical contact. Can anyone help us?
I just wanted to say how thankful I am that you are doing this site. I have not searched the internet for chiari info in a couple years now so I'm a bit behind on what is out there by now. I am starting my own site within the next week and so that's why I'm doing some research again now. I had decompression surgery in December of 2008 and am now about 98% recovered. I praise God for my healing as I knew there was a very great chance I'd not get that kind of recovery from it. It's been a tough few years but I've also learned a lot. I pray that everything goes well for you. God bless, Cortney
hi chris i own a tech blog http://www.blog365.co.uk well i do have a bit of command on tech related stuff but not stories.How can i be a part of it
Hi Chris, I just joined this site and was wondering if there was anything I could do to help the site out! It looks wonderful and I'm still trying to figure everything out but I think you did a really good job.
Just let me know!
Thanks,
Karen
Hi Karen
Thanks for the visit and thank you for your kind comments. I just wish that I really had the chance to keep the site current. Lots to do and too little time to do it in.....
I hope the info helps tho ;)
Thanks
Chris
Hi Chris just stumbled across your web site.Im not very good at using these sort of things.Im in Plymouth and wanted to find other people in Plymouth,Devon who have Chiari like me.I am on the waiting list for surgery.I have Chiari type 1,my syptoms are so bad i am more or less house bound.Youve done a great job with this site,and as you know its a much needed service.Regards Michelle.
hi michelle,
I hope you have had your operation and are recovering well. I hope you are more mobile now. x
I have recently had decompression surgery (october) and am still under the surgeons at derriford hospital, plymouth.
I haven't has the most smoothes of recoverys and I seem to have gained a varied of symptoms rather than lost them which is somewhat upsetting and scary.
It would be nice to talk to other people who have this condition and share experiances. there are so many people who don't understand this condition and how it effects people which i feel can fine us suffers struggling to get the help and support we need.
i agree with you michelle that this site does a great job in making us feels there is people out there who can help.
hi michelle my name is cheryl.
i have recently had my decompresion surgery (in october) but have had some very strange post op symptoms. i hope you have had your operation and are recoverying.
it would be nice to find out how other people have coped pre and post surgery. i have good and bad day ut am strugling to come to terms with what has happened and how it as change my life.
best wishes