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Hi, my name is Chris. I am 40 years old, married to Sharon and have 2 young children. I have Chiari and Syringomyelia and went through Decompression surgery in April 2009. The aim of this blog is to raise awareness of this condition and offer support by way of helpful information to other sufferers. This blog represents my own experiences, those of my friends and people that I have met with these conditions and the great advice that I have been offered and my journey towards either acceptance or recovery.

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Arnold Chiari Malformation and Syringomyelia Support

PostDateIconMon, 08/17/2009 - 18:35 | PostAuthorIconChris

Looking for information from actual real people from the UK and further afield? Need help and advice or suggestions from people who have actually been there? Are you a sufferer, carer or friend / colleague of someone that is affected?

Then visit www.chiari.co.uk and join the forums.

Help and support from real people at various stages of diagnosis and treatment and from all over the country and further afield.

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ACM

Submitted by Welcome Guest on Wed, 07/06/2011 - 12:33.

Hi,
My wife as been diagnosed with ACM after 8 years of hell. We lost our house and jobs as we have 2 young children and my wife could not get them to and from school.
Now we are stuck that we have no one to help us further as the specialist will not see us until September. We feel thing are moving to slow and my wife is getting worse. Anyone know of any other specialist we can go to.
You can email me at boynat2@yahoo.co.uk.
Regards Paul

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Disclaimer: I am not medically trained and this blog represents my own opinions and understanding of Chiari and syringomyelia and all things related. Any information contained in this site should not be used in replacement of any advice given by your own medical professional. Comments made by other contributors may not necessarily reflect my own opinion or views. If you wish to take advice given to you from this site, you do so at your own risk. Always check with your medical professional before making any decisions based upon the information contained in this site as I will not be held responsible.