This Blog Needs You!
Mon, 11/08/2010 - 18:54 | 
Chris 
Tags: Welcome to Chiari Blog
Wed, 09/09/2009 - 09:52 | Chris 
Hello and welcome! If you want to know more about Chiari Malformation (kee-ahh-ree) and Syringomyelia (see-ring-oh-my-eehlia), then please feel free to browse through the menu's and read through the posts.
To navigate around the site easily, use the menu items up at the top by left clicking them. Once you have read a post, either use your browers "back" button, the menu button or the "Home" button on the site to take you back to the home page.
You will find other links to other items that maybe of interest at the bottom of most posts.
If you are a visitor, please think about signing up as a user. NO information is collected about you at all, not even your email address. This just enables the site to show your name when you are on line. This also enables you to post comments and join in the polls from time to time.
A Little About Me.
Wed, 09/02/2009 - 12:24 | Chris 
My name is Chris, I am a 40 year old bloke, married with two small children and I live in Cheshire UK. I was officially diagnosed with Chiari Malformation Type 1 and Syringomyelia in early January 2009.
I had Foramen Magnum Decompression surgery in early April of 2009 in an attempt to stop the progression of my symptoms caused by my 17mm herniation and my syrinx which covered C1 to C3.
Just like many others, when I was diagnosed I had never heard of either conditions, so I searched the internet to find some answers. What I did come across was a mix of information, some of it relevant, some of it not, some of it contradictory but mostly I found it very confusing and very scary.
Some Advice Please
Sun, 04/03/2011 - 22:34 | goughy34 Hi
I have 5 year old daughter who have been diagnosed last. week of having Arnold Chiari (1). We saw a Neuro Surgeon the day after received a phone call from the hospital who took the initial MRI scans.
Those 24 hours were all of a blur as you could imagine fter getting the phone call and reading up on the condition before we saw the a Nero Surgeon.
He explain the condition and the whys and wherefores and surgeryed the best he could to non surgical people. My duaghter has been put on a wating list for a further MRI to 'dot the Is' and 'cross the ts' as he called it to check for .
Obviously we are in the hands of the surgeon but would welcome some independant advice at this stage, as surgery scares the living daylights of us.
Visitors Comments
Fri, 10/16/2009 - 13:24 | Chris 
Please feel free to comment on the blog or it's content. It is wonderful to have visitors to the site, and even better if you join up and make yourself visible.
I would love to hear what you think!
If joining up is not for you, or if you have not found what you are looking for and would like to see an article here, then please let me know.
This blog is growing, and I have not yet added everything that I want to. I am also learning something new every day about Chiari and Syringomyelia and will post when I have done enough research for it to be of use.
Want to Help Chiari Blog?
Sat, 09/26/2009 - 13:06 | Chris Do you want to help Chiari Blog reach more people in the UK and beyond? Do you have Chiari? Do you know someone that has? Want to help them? Do you need more information?
Have you found any information here that has helped you?
If you would like to contribute and help increase awareness there are many ways that you can do this.
1. Bookmark my site in your favourites and keep coming back.
2. Join the forum and register as a user.
3. Subscribe to the forum and receive regular newsletters and never miss out on new posts and information. If you subscribe before the end of December 2009 you will be entered into our free draw to win 2 weeks accommodation at my self catering apartment in LANZAROTE. (see the relevant post on here for details)
What is Arnold Chiari Malformation and Syringomyelia?
Sat, 09/12/2009 - 12:55 | Chris 
What is Arnold Chiari Malformation? (Type 1)
Chiari Malformation Type I describes a condition where the cerebellar tonsils at the back of the brain descend or herniate below the base of the skull through the large opening called the Foramen Magnum into the spinal area. This results in compression of the brain stem, surrounding nerves and spinal cord, and blocks the normal flow of cerebrospinal fluid throughout the skull.
